About The Gluten Free Lifesaver

Greetings,

and a very warm welcome to Thank Heaven’s – the Gluten Free Lifesaver!

My “first” day as a coeliac was also the last day of my life as I had come to know it. I went from worldly and wise to lost and lonely within minutes of getting the diagnosis. Happy of course, to finally have a diagnosis and  fit into a box, but quickly realizing how many holes were in that box.

I had known myself to be a capable individual with a decent enough accumulation of experience to get me by. Suddenly I was much like a baby, learning about the world all over again. Rediscovering my body and its antics, my likes and dislikes, and all the while facing  people around me with getting to know a new version of me. At least that’s how it felt. I knew next to nothing of the road ahead, and the more I learnt the more I realized I didn’t know – if that makes any sense. It shouldn’t be like that. Just because coeliacs disease isn’t a cash cow for the pharmaceutical industry (yet), doesn’t mean that hundreds of thousands of people should be left to fend for themselves in the midst of half-truths and general incompetence. I found that if I scrape this issue to the very bone, I am left with three steadily reoccurring frustrations that kept throwing me off my path:

  • I didn’t know who to trust
  • The people I should be able to trust didn’t have all the information
  • The necessary information wasn’t readily available to either of us

Recovery was the blind leading the blind. All trial and error, and in coeliacs disease every error is painful and disappointing. Thank heavens for all the individuals out there on the world-wide-web who fight for every inch of information, test it (often to their own detriment), then share their valuable knowledge with the newbies. I have a lot of time for them.

Coeliacs disease should come with a user guide. The diagnosis came delivered to my doorstep much like an Ikea flatpack. My life was all bits and pieces, all screws loose and lots of little packets to be opened. No tools, no manual, no handyman to show me the works. Just me, and an empty room waiting for a new piece of furniture.

I can’t give you the manual and I’m sorry about that. But I can be your handyman. Because I have got that chest of drawers up and working pretty good now, and I made most of the mistakes myself in the process. I don’t know everything that works, but I sure know a lot that doesn’t. And that’s a start. Hopefully a slightly better one than what you might face without me.

I am better now. Everything is a lot better. And I am very grateful to everyone who contributed to the recovery of my body and my life. I hope I can contribute too.

Lots of love from Kristine

7 thoughts on “About The Gluten Free Lifesaver

  1. It is interesting to hear your point of view and explain exactly how my son and I felt when he was first diagnosed with Coeliac Disease 5 years ago when he was only just 5 years old. Then my daughter around 2 years ago was diagnosed with Coeliac and thankfully since then has been ‘down graded’ to Gluten Intolreance.

    Thank you for putting it plainly and in words that hopefully people can understand and relate to. It is a hard life, when you see all your ‘mates’ eating EVERYTHING they like and you are soo restricted on what you can and can not eat. :) And most of these people see it as a life style choose, in our case it’s definately not one of those. It’s to keep them healthy and at the worst case senario, alive!

    Good luck with your travel down this road, it is always nice to know another person going down the same road as ours.

  2. Thank you for your comment Jules, just like you I appreciate hearing other peoples stories. There is much work to be done in paving the way for coeliacs (and intolerants), and more than anything it is important that we share our experiences.

    I admire mums (like yourself) who cope with the challenges of making a coeliac childs everyday as “normal” as possible!

    I hope Thank Heaven’s can help make life a tad bit easier for at least a few. If you have any questions, comments or requests, please don’t hesitate to let me know.

    All the best,
    Kristine

  3. I think your website is wonderful and I will keep coming back! Thank you for making such a lovely and helpful blog!

  4. Thankyou for all of your wonderful recipes and sharing your story. I have only recently been diagnosed with coeliac after almost 10years of constant nausea, skin rashes, depression and 4 separate hospitalisations. Since going gluten free for the last 2 months and while I still find it difficult to go out for a meal, I’m finally feeling happy and normal again and ready to get back into what I love most- baking. Your blog has been amazing in helping me convert my trusted recipes and creating some new ones. I’m looking forward to the next instalment. :-)

    • Hi Lolly,

      Than k you for your lovely feedback! :)

      I’m so glad you have finally found what works for you. I’m sorry you had to go through those challenges for so long, and trust me, I know how it feels. Hope this blog can continue to offer you some inspiration, hope to “see” you here again!

      -Kristine

What do you think?

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s